Traitor.

We hit the highs and lows here, on a health (i.e. non-cycling-specific) post.

I’ve found a mix of food and supplements that seems to be working.  An average day goes like this:

Breakfast:  12 ounces of almond milk with protein powder, glutamine, liquid Vitamin D droplets (5,000 IU because I have a serious deficiency and 3,000 IU wasn’t touching it), and licorice extract.  Then, a vitamin-B multicomplex.  An almond milk yogurt with some GF/DF granola.  Some third item (GF/DF muffin or cinnamon bread).  Coffee.

Mid-Morning:  Snack.  Probably a Kind bar or a Larabar, or a Thunderbird Energetica.

Lunch:  Something GF/DF.  Maybe Chipotle.

Mid-Afternoon:  Another snack.  Probably some nuts with it.

Dinner:  If I’m lucky enough to be home, something delicious from the Mrs.  If I’m out, something GF/DF.

Post Dinner:  Some sort of fatty snack.  Chips, coconut milk ice cream, etc.

Bedtime:  A huge heaping of iron to work on my anemia.  Fish Oil high in DHA.  A herb mix.  Magnesium.  Something else that’s presently escaping me.

Often, there’s another snack that I sneak in there somewhere.  I’m eating a ton.  I’m not really putting on weight, but I’m not losing weight either.  At one point, a doctor had recommended that I work on adding a little more bodyfat…he was concerned that my then-single-digit bodyfat was leading to more dramatic swings in various levels.  So I’ve put on a few pounds that are basically just fat, and am up to around 10-11% body fat.  For whatever reason, my body decided to put my newly added fat directly on my stomach–so thanks for that, years of evolution and male genetics.

That’s all positive.  I’ve been training hard this winter.  Other than vacation, I haven’t missed a ride–at least 3 a week, and the vast majority of the time, quite a bit more.  So where’s the negative?

I’m just a few days out from Barry Roubaix.  This morning, I was treated to a series of additional blood tests (six vials–a new record) and various and sundry other tests, trying to diagnose new and exciting symptoms indicative of some form of internal bleeding.  And wonder of wonders, I was treated to a vision-impaired phlebotomist who had not yet had her morning coffee.  Blood draws by braille are not recommended.

If this were the kind of blog where we swore, we would be swearing now.

I’m keeping a positive attitude.  Really.  I am.  So f#(%!#@ positive.  But I feel like every time I start having some success–some normalcy in the realm of how my body functions–something comes along and topples the Jenga that is my fragile constitution.  John Mayer’s girlfriend’s body is a wonderland.  My body is a traitor.  I keep thinking that all I need to do is stay religiously GF/DF, but it never seems to be enough.  It’s not enough to just eat and ride…there’s always something more.  I would say that I’m frustrated, but it’s a little more akin to feeling helpless.  I’m feeling more and more like I don’t know what I’m doing, or what I should be doing, and I just keep waiting for the other shoe to drop.

I’m still going to try to get it done at Barry.  It just might be a little less done than I’d like it to be.

5 thoughts on “Traitor.

  1. Damn. As frustrating and unsatisfying as it is, in the end, all you can do is play the hand you’re holding as best you can. I’m sure you’ve been keeing the counterfactuals in mind: scary to consider how messed up things would be if you weren’t doing all you’ve been doing. Sounds to me like you have things pretty close to fully dialed. Trust your plan. It’s gotten you this far. It will in all likelihood carry you farther, setbacks notwithstanding.

    • Thanks Dave.

      I blog about the celiacs from time to time both to vent, and to try to continue to be open about my health, in the hopes that others who are going through the same thing know that they aren’t alone in their experience. I’m working at controlling it as much as possible–with the amazing support of my wife and friends. It could be a lot worse, really. Just some issues to work through.

  2. Sorry to hear all about that. Really enjoy this blog. I have no health issues and am shamed by the quality and quantity of riding you get in. It is admirable. I seem to have an endless amount of excuses (kids, work, ski season — the usual). I appreciate that you don’t let something like the celiacs get in your way (much, at least). Hang in there!!!

  3. Seriously so glad I found your blog! I haven’t found anyone else with Celiac who is regularly active, so I have no way of knowing if the stuff I”m dealing with is common with people who have treated Celiac (clean biopsy).

    I definitely have the same issue. I’m 7+ years into cycling, 46 yr old female. Diagnosed in 2006. I also find that I have super unpredictable ups and downs with regards to energy and performance. I also seem to struggle with low/normal levels of D and iron (I supplement with 5,000iu of D also, and just started iron a month or so ago when it tested kinda low-37).

    Do you get infections more easily, too? This year I’m starting with a deficit-caught the flu which went to bronchitis and then pneumonia. But after antibiotics I’m recovering way better than I expected (took them in January) and am back up to two computrainer sessions a week plus one hard outdoor ride.

    Bottom line is the incredible frustration with having unpredictable energy/performance levels, even though I’m not doing anything different. On the upside, 7 yrs in and I’m still getting personal records and able to do more than the year before.

    Not sure what you prefer, but if you were a breadaholic (I definitely was!) have you found/tried Joan’s gluten free bagels? Horribly expensive, but they ship the dough and you bake it for 20 mins and voila! Real bagels! I eat them every day. Also, if you like beef jerkey, Trader Joes has one kind that’s gluten free. I plan on bringing some with me for the Trek cycling trip to Tuscany.

    • Wow–a kindred spirit.

      Yeah, I was a breadaholic. Warm french bread with butter…or olive oil and parmesan…how I miss thee.

      I’ve found UDI’s frozen dinner rolls and breads to be a pretty darn good substitute–but I’ll have to try Joan’s.

      My Vitamin D levels were considerably lower than yours–with 5000 IU of Vitamin D, I’m at 41. Before I started taking the supplements, I was at 21.

      I’ve been wondering about the infections and such–it does seem like I’m sick more often. I’ll have to pay attention.

      So much to talk about! I’m swamped today, but I’d love to talk more some time!

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